eyesight, health, mommyhood

Eye Surgery: Take Two

silly face twoWe are on the eve of the second surgery so I am posting this the night before. The process leading up to this has been much calmer since we know exactly what to expect. Full Speed is becoming a seasoned pro at eye drops and honestly that is half the battle. Poor guy is still getting two drops twice a day in his right eye. “The yellow one burns, Mommy,” he says each time we do them. We have progressed from long ago when I would have to straddle him to keep his arms locked in place and peel his eyelids back to get drops of any sort in. Now, he sits pleasantly on our counter, tilts his head back and I plop the drops in without incident. Maturity and growth are a beautiful thing. That is good because soon we will be starting with a series of drops for several weeks with his left eye.

The afternoon for Full Speed’s pre-op appointment ended up dragging on for over four hours before all was said and done. The doctor did her best to configure a most likely eyeglass prescription for Full Speed that she wanted us to get to an optometrist ASAP. This is her best guess until the completion of the second surgery and subsequent eyesight tests are done on Full Speed. It was already four in the afternoon. Full Speed and I booked it to the optometrist’s and made it (everything closes early in Florida). The staff marveled at his prescription’s gigantic leap from – 30 to +7.5. The ladies were in such a titter that they forgot to measure his head for his frames before we headed out the door (mistake!).

Full Speed was already done with his day. He had lost patience even when we were with our doctor (whom he adores and calls his ‘girlfriend’). He was tired of sitting and waiting. He had sat patiently (kind of) while we picked out new frames at the optometrist’s. I could sense he was on the edge of losing it. The reason he held it together is because he knew he was going to have another date at Applebee’s with his Mom. So we get the frames picked out and leave all the fussing eye-people behind and make the drive over to Applebee’s. No sooner did we walk in the door, my cell phone rings. They need us to come back to get the forgotten measurements.

You should have seen the dark cloud that descended on Full Speed’s face. He was NOT happy. We head back and get the measurements needed but he is aloof with the fawning staff and at times, down-right rude (I completely understood because it was almost six o’clock at this point). Before we leave for the second time I pointedly ask, “Do you have everything you need? Because if you don’t and we have to come back, I don’t know what that will do to Full Speed.”

They assured me all was complete. We finally get to Applebee’s, have our table and drinks, and our orders were in. It had been such a long afternoon and a long time since a potty-break, so we left our drinks and headed to the bathroom. When we return to our table our drinks are gone. They bussed our table and we hadn’t even consumed anything. Not even a drop of our beverages. It doesn’t help that our waiter is a good ten years younger than me, brings me the wrong order and has to keep saying ‘sorry ma’am’ over and over. I felt like I was one-hundred and twenty seven years old!

Eventually Full Speed and I went on to have a lovely date. He even told me that he looked forward to it all day. “I couldn’t wait to have a date with my favorite woman in the whole world. You, Mommy.” I’m quoting him exactly. That’s worth all the ‘sorry ma’ams’ in the world.
bathtime

It is now close to bedtime and I just gave Full Speed his last allowed food until the surgery is complete. He picked Oreos. I would have let him have pretty much anything he wanted. T.Puzzle is at Grandma and Grandpa’s so all is quiet. Full Speed is playing with cars and we are waiting for Mad Dog to get home (I said Full Speed could wait up for him if he was good and let’s face it, after all the nonsense today, he earned it).

I’m going to bed tonight with many prayers of thanks in my heart. I am thankful for the excellent medical care that we have access to and the hopeful certainty Full Speed will come through the other side of surgery with much improved vision in his left eye. I thank my loyal readers for their support that continues to inspire me. Most of all, I thank God (or whoever may be out there) for giving me an amazingly spirited, gift of a child (and a spare to boot). Good night!

eyesight, health, mommyhood, parenting, self-discovery

Eye Am Thankful

So far the result of Full Speed’s surgery has been spectacular. It doesn’t seem real. I am having trouble imagining the possibility of much improved vision.

baby in glasses
Full Speed was first diagnosed with extreme myopia (which means he was off-the-charts nearsighted) when he was 20 months old. The subsequent journey and various doctor’s appointments from geneticists to surgeons has been a test of courage and faith. I have always held out hope in the back of my mind that his vision would be good (excellent even). I have prayed endlessly that he would have 20/20 vision. I have cried and then I have prayed some more. Eventually, I started to take my cues from Full Speed. He began eye-testing with letters when he was two years old. He handled every appointment (well, there were some deep in the heart of the terrible twos that I think I’ve blocked from memory) the best he could. As he matured, he came to respect doctors and followed their directions with ease. He is so comfortable in hospital/doctor office settings now it’s almost like doing anything else we might do during our day.

I also have learned to evaluate Full Speed’s condition based on his functioning. His functioning is awesome. He has mastered all his physical milestones and then some and is right on track intellectually. I began to realize that extreme myopia later diagnosed as ectopia lentis et pupillae with lens subluxation (dislocated lenses) looks pretty amazing if you ask me.

yellow belt kick

I had this strange moment when Full Speed was three years old and he was testing for his first Tae Kwon Do belt. As I sat in the testing room with family and friends I had this sort of out of body experience. I saw clearly for the first time that if all Full Speed was ever allowed was minimal vision, he was going to kick life in the ass and be a huge success. I learned a new prayer that day. The prayer was a thank you for the vision provided to my son for it is exactly what he needs to be who he is. That was the day I started to learn acceptance. I accepted his coke-bottle lenses whole heartedly (I mean come on, they are freakin’ adorable!). I accepted that regular eye check-ups (sometimes done under anesthesia) and doctor’s visits were a part of our lives. I accepted that while some of his eye care may be a challenge (patching his left eye on a daily basis), it’s just what we do.

Flash forward and here we are with another major eye surgery under our belts and on the cusp of much improved vision. I know whatever happens Full Speed will have exactly the amount of vision he needs to be whoever he will be (which is incredible in my slightly biased opinion). I will certainly be thankful if that is anywhere near 20/20 vision.

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health, humor, life in pictures, mommyhood, parenting

Well I Never!

The surgery was a success. Full Speed’s right lense was removed and it went smoothly and quickly. We learn how much his vision has improved in the days and weeks to come. He handled everything beautifully.

Even though he was a champ, waking up from anesthesia was a bit of a challenge. The drugs can alter behavior and demeanor. That certainly was true for Full Speed.  Granted, he is a stubborn boy by nature, this took it one step farther.

He initially woke up yelling, “I WANT MY PATCH OFF OF MY FACE! I WANT THIS STUFF OFF MY ARM!” He wanted everything off from the patch to his IV immediately. He wanted to let the world know it, too. He looked at me with anger in his eyes and proceeded to successfully yank off his pulse/ox (a tiny contraption that is bandaged to your finger to measure your oxygen level). I managed to stop the yanking and pulling off of everything else, but the pulse/ox fell limp to the floor.

He yelled and yelled. He demanded and yelled some more. Mad Dog and I did our best to redirect. It only made him angrier.

I noticed (as Moms do) that it had been four hours since Full Speed had last used the facilities. The previous time he had emerged from surgery, he peed all over himself and all over me. Moms are pretty on top of things so I had extra clothes for him packed. For me I had nothing. I had to wear scrubs home. Of course Mad Dog thought that was kind of hot. I remember feeling exactly the opposite of hot in that moment.

I asked Full Speed, “Do you have to use the bathroom?”

“NO!” he responded.

“Do you want Mommy or Daddy to take you?” I said.

“I WANT NOBODY TO TAKE ME!”

“Sweetie, you need to use the bathroom….,” I say again. Before I finish my thought he shouts, “NO! I AM NOT GOING TO THE BATHROOM!”

Mad Dog tries to intervene. “Full Speed, you are going to the bathroom. Let’s go.”

He whips his head around and faces us both. He is clearly angry. “NEVER!”

He is never going to the bathroom again apparently. Someone find me some scrubs. Looks like I’m going to need them.

health, life in pictures, parenting

The Waiting Game

Full Speed has been as brave as he possibly can be. The doctor told him that she was going to put music on in the OR so they could dance. He gave her a signature Full Speed smile (he thinks she’s cute).

Mad Dog and I are coping and getting along (sort of!). I held it together beautifully until they took Full Speed back to the OR. I almost completely lost it. I felt weepy, nauseous and just short of a panic attack.

Doing better now. We wait. That’s the only thing left to do.